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Duchenne型進行性筋ジストロフィーの「エンド・オブ・ライフ」 ケアに関する研究 : 国内外の研究動向
https://doi.org/10.15069/00000896
https://doi.org/10.15069/0000089673cee378-3067-4c41-953a-45ff6aea0ff1
名前 / ファイル | ライセンス | アクション |
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19 研究紀要 10号 松山 (483.2 kB)
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Item type | 紀要論文(ELS) / Departmental Bulletin Paper(1) | |||||||||||||||||
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公開日 | 2009-03-25 | |||||||||||||||||
タイトル | ||||||||||||||||||
タイトル | Duchenne型進行性筋ジストロフィーの「エンド・オブ・ライフ」 ケアに関する研究 : 国内外の研究動向 | |||||||||||||||||
タイトル | ||||||||||||||||||
言語 | en | |||||||||||||||||
タイトル | End of life care in Duchenne muscular dystrophy: grobal trends of researches and issues | |||||||||||||||||
言語 | ||||||||||||||||||
言語 | jpn | |||||||||||||||||
キーワード | ||||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | Duchenne型進行性筋ジストロフィー | |||||||||||||||||
キーワード | ||||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | 「エンドオブライフ」ケア | |||||||||||||||||
キーワード | ||||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | 構成要素 | |||||||||||||||||
キーワード | ||||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | 支援 | |||||||||||||||||
キーワード | ||||||||||||||||||
言語 | en | |||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | Duchenne muscular dystrophy | |||||||||||||||||
キーワード | ||||||||||||||||||
言語 | en | |||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | end-of-life care | |||||||||||||||||
キーワード | ||||||||||||||||||
言語 | en | |||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | component | |||||||||||||||||
キーワード | ||||||||||||||||||
言語 | en | |||||||||||||||||
主題Scheme | Other | |||||||||||||||||
主題 | support | |||||||||||||||||
資源タイプ | ||||||||||||||||||
資源タイプ識別子 | http://purl.org/coar/resource_type/c_6501 | |||||||||||||||||
資源タイプ | departmental bulletin paper | |||||||||||||||||
ID登録 | ||||||||||||||||||
ID登録 | 10.15069/00000896 | |||||||||||||||||
ID登録タイプ | JaLC | |||||||||||||||||
ページ属性 | ||||||||||||||||||
内容記述タイプ | Other | |||||||||||||||||
内容記述 | P(論文) | |||||||||||||||||
著者名(日) |
松山, 光生
× 松山, 光生
WEKO
874
× 藤田, 和弘× 倉内, 紀子
WEKO
221
|
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著者名よみ |
マツヤマ, ミツオ
× マツヤマ, ミツオ× フジタ, カズヒロ× クラウチ, ノリコ |
|||||||||||||||||
著者名(英) |
MATSUYAMA, Mitsuo
× MATSUYAMA, Mitsuo× FUJITA, Kazuhiro× KURAUCHI, Noriko |
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著者所属(日) | ||||||||||||||||||
九州保健福祉大学保健科学部言語聴覚療法学科 | ||||||||||||||||||
著者所属(日) | ||||||||||||||||||
吉備国際大学社会福祉学研究科 | ||||||||||||||||||
著者所属(日) | ||||||||||||||||||
九州保健福祉大学保健科学部言語聴覚療法学科 | ||||||||||||||||||
著者所属(英) | ||||||||||||||||||
en | ||||||||||||||||||
Department of Speech-Language-Hearing Therapy, School of Health Sciences Kyushu University of health and welfare | ||||||||||||||||||
著者所属(英) | ||||||||||||||||||
en | ||||||||||||||||||
Graduate School of Social Welfare Studies, Kibi International University | ||||||||||||||||||
著者所属(英) | ||||||||||||||||||
en | ||||||||||||||||||
Department of Speech-Language-Hearing Therapy, School of Health Sciences Kyushu University of health and welfare | ||||||||||||||||||
抄録(英) | ||||||||||||||||||
内容記述タイプ | Other | |||||||||||||||||
内容記述 | In the present study, we examined the concept of end-life care for Duchenne muscular dystrophy and trends in related research with the objective of systematizing such care. We obtained the following findings: 1) A search on the PubMed database of literature published before December 31, 2007 containing the term "end-of-life" in the title or abstract yielded 2087 results, and this literature tended to become more common in recent years. However, when the search was narrowed down to include the term "muscular dystrophy", only one study (Hilton et al, 1993) was found. 2) A study on the components of end-of-life care led to the following. multidisciplinary support, the perspective of patients, and relatively long-term support for end-stage patients. 3) Although research had been conducted on support during the terminal stage for Duchenne muscular dystrophy both in Japan and abroad, no studies were based on the concept of end-of-life care. | |||||||||||||||||
雑誌書誌ID | ||||||||||||||||||
収録物識別子タイプ | NCID | |||||||||||||||||
収録物識別子 | AA11490417 | |||||||||||||||||
書誌情報 |
九州保健福祉大学研究紀要 en : Journal of Kyushu University of Health and Welfare 巻 10, p. 127-131, 発行日 2009-03 |